Parents’ perspectives on the dilemmas with intervention for infants with auditory neuropathy spectrum disorder: A qualitative studyCitation formats

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Parents’ perspectives on the dilemmas with intervention for infants with auditory neuropathy spectrum disorder: A qualitative study. / Uus, Kai; Young, Alys; Day, Marianne.

In: International Journal of Audiology, Vol. 54, 2015, p. 552-558.

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Uus, Kai ; Young, Alys ; Day, Marianne. / Parents’ perspectives on the dilemmas with intervention for infants with auditory neuropathy spectrum disorder: A qualitative study. In: International Journal of Audiology. 2015 ; Vol. 54. pp. 552-558.

Bibtex

@article{6cf39116895a49359808809a1e7c0de9,
title = "Parents{\textquoteright} perspectives on the dilemmas with intervention for infants with auditory neuropathy spectrum disorder: A qualitative study",
abstract = "Objective: This paper explores parental experiences of choices surrounding auditory management and language and communication development for infants and children with auditory neuropathy spectrum disorder (ANSD) in the light of the heterogeneity of condition, a poor evidence base for best outcomes in relation to management options, and the scarcity of data rooted in parent and family experience. Design: Qualitative narrative study. Study sample: Twenty-fi ve parents of 21 children (aged four months to six years) identified with ANSD through the newborn hearing screening programme. Results: Families identify barriers to early management due to confl icting expert opinions and ANSD-specific challenges with diagnosis and prognosis in infants, and share their accounts on their own evaluations of intervention benefit in their children. Conclusions: The results are of relevance to the clinicians and other professionals involved in early intervention, management, and support of infants with ANSD.",
keywords = "Auditory neuropathy spectrum disorder, management",
author = "Kai Uus and Alys Young and Marianne Day",
note = "This work was funded by a grant from the National Deaf Children {\textquoteright} s Society.",
year = "2015",
doi = "10.3109/14992027.2015.1020970",
language = "English",
volume = "54",
pages = "552--558",
journal = "International Journal of Audiology",
issn = "1499-2027",
publisher = "Informa Healthcare",

}

RIS

TY - JOUR

T1 - Parents’ perspectives on the dilemmas with intervention for infants with auditory neuropathy spectrum disorder: A qualitative study

AU - Uus, Kai

AU - Young, Alys

AU - Day, Marianne

N1 - This work was funded by a grant from the National Deaf Children ’ s Society.

PY - 2015

Y1 - 2015

N2 - Objective: This paper explores parental experiences of choices surrounding auditory management and language and communication development for infants and children with auditory neuropathy spectrum disorder (ANSD) in the light of the heterogeneity of condition, a poor evidence base for best outcomes in relation to management options, and the scarcity of data rooted in parent and family experience. Design: Qualitative narrative study. Study sample: Twenty-fi ve parents of 21 children (aged four months to six years) identified with ANSD through the newborn hearing screening programme. Results: Families identify barriers to early management due to confl icting expert opinions and ANSD-specific challenges with diagnosis and prognosis in infants, and share their accounts on their own evaluations of intervention benefit in their children. Conclusions: The results are of relevance to the clinicians and other professionals involved in early intervention, management, and support of infants with ANSD.

AB - Objective: This paper explores parental experiences of choices surrounding auditory management and language and communication development for infants and children with auditory neuropathy spectrum disorder (ANSD) in the light of the heterogeneity of condition, a poor evidence base for best outcomes in relation to management options, and the scarcity of data rooted in parent and family experience. Design: Qualitative narrative study. Study sample: Twenty-fi ve parents of 21 children (aged four months to six years) identified with ANSD through the newborn hearing screening programme. Results: Families identify barriers to early management due to confl icting expert opinions and ANSD-specific challenges with diagnosis and prognosis in infants, and share their accounts on their own evaluations of intervention benefit in their children. Conclusions: The results are of relevance to the clinicians and other professionals involved in early intervention, management, and support of infants with ANSD.

KW - Auditory neuropathy spectrum disorder

KW - management

U2 - 10.3109/14992027.2015.1020970

DO - 10.3109/14992027.2015.1020970

M3 - Article

VL - 54

SP - 552

EP - 558

JO - International Journal of Audiology

JF - International Journal of Audiology

SN - 1499-2027

ER -