Eliciting Preferences for Information Provision in Newborn Bloodspot Screening ProgramsCitation formats

Standard

Eliciting Preferences for Information Provision in Newborn Bloodspot Screening Programs. / Wright, Stuart J; Ulph, Fiona; Dharni, Nimarta; Payne, Katherine.

In: Value in Health, Vol. 20, No. 4, 01.04.2017, p. 651-661.

Research output: Contribution to journalArticle

Harvard

APA

Vancouver

Author

Bibtex

@article{b24985bd0076463eb35a49a7c3332a39,
title = "Eliciting Preferences for Information Provision in Newborn Bloodspot Screening Programs",
abstract = "BACKGROUND: The national newborn bloodspot screening programs (NBSPs) are continually expanding to screen for more conditions.OBJECTIVES: To quantify parents' preferences for information and the way in which this is provided in example NBSPs.METHODS: A hybrid choice experiment, combining a conjoint analysis and a discrete choice experiment, was designed. A sample of current and future parents between the ages of 18 and 45 years was identified via an Internet panel. Respondents completed one of two survey versions (9 conditions and 20 conditions) comprising a validated measure of attitudes toward involvement in decision making, 6 CA questions (11 information attributes), 10 DCE questions (4 attributes: 3 process and the ability to make an informed decision), and demographic questions.RESULTS: Of the 702 respondents who completed the survey, 58{\%} were women, 48{\%} were between 25 and 34 years old, and 48{\%} were current parents. All types of information were identified to statistically significantly improve parents' ability to make a decision. Participants preferred taking an {"}active{"} role in decision making. Respondents to the 9-condition survey preferred information before 20 weeks (willingness to pay [WTP] £11.88; CI £5.56 to £19.53) and the 20-condition group after 20 weeks (WTP £15.91; CI £10.64 to £21.63). All respondents disliked receiving information 3 days after birth, with the 20-condition group also being averse to receiving it on day 5 (WTP -£11.20; CI -£18.40 to 5.72). Respondents in both groups preferred to receive their information in an individual discussion.CONCLUSIONS: This study suggests that parents' preferences for receiving NBS information differ from how this information is given in current UK practice.",
keywords = "Adolescent, Adult, Choice Behavior, Consumer Behavior, Consumer Health Information, Dried Blood Spot Testing, Female, Health Knowledge, Attitudes, Practice, Humans, Infant, Newborn, Male, Middle Aged, Neonatal Screening/methods, Parents/psychology, Surveys and Questionnaires, United Kingdom, Young Adult",
author = "Wright, {Stuart J} and Fiona Ulph and Nimarta Dharni and Katherine Payne",
note = "Copyright {\circledC} 2017 International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Published by Elsevier Inc. All rights reserved.",
year = "2017",
month = "4",
day = "1",
doi = "10.1016/j.jval.2016.11.007",
language = "English",
volume = "20",
pages = "651--661",
journal = "Value in Health",
issn = "1098-3015",
publisher = "Elsevier BV",
number = "4",

}

RIS

TY - JOUR

T1 - Eliciting Preferences for Information Provision in Newborn Bloodspot Screening Programs

AU - Wright, Stuart J

AU - Ulph, Fiona

AU - Dharni, Nimarta

AU - Payne, Katherine

N1 - Copyright © 2017 International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Published by Elsevier Inc. All rights reserved.

PY - 2017/4/1

Y1 - 2017/4/1

N2 - BACKGROUND: The national newborn bloodspot screening programs (NBSPs) are continually expanding to screen for more conditions.OBJECTIVES: To quantify parents' preferences for information and the way in which this is provided in example NBSPs.METHODS: A hybrid choice experiment, combining a conjoint analysis and a discrete choice experiment, was designed. A sample of current and future parents between the ages of 18 and 45 years was identified via an Internet panel. Respondents completed one of two survey versions (9 conditions and 20 conditions) comprising a validated measure of attitudes toward involvement in decision making, 6 CA questions (11 information attributes), 10 DCE questions (4 attributes: 3 process and the ability to make an informed decision), and demographic questions.RESULTS: Of the 702 respondents who completed the survey, 58% were women, 48% were between 25 and 34 years old, and 48% were current parents. All types of information were identified to statistically significantly improve parents' ability to make a decision. Participants preferred taking an "active" role in decision making. Respondents to the 9-condition survey preferred information before 20 weeks (willingness to pay [WTP] £11.88; CI £5.56 to £19.53) and the 20-condition group after 20 weeks (WTP £15.91; CI £10.64 to £21.63). All respondents disliked receiving information 3 days after birth, with the 20-condition group also being averse to receiving it on day 5 (WTP -£11.20; CI -£18.40 to 5.72). Respondents in both groups preferred to receive their information in an individual discussion.CONCLUSIONS: This study suggests that parents' preferences for receiving NBS information differ from how this information is given in current UK practice.

AB - BACKGROUND: The national newborn bloodspot screening programs (NBSPs) are continually expanding to screen for more conditions.OBJECTIVES: To quantify parents' preferences for information and the way in which this is provided in example NBSPs.METHODS: A hybrid choice experiment, combining a conjoint analysis and a discrete choice experiment, was designed. A sample of current and future parents between the ages of 18 and 45 years was identified via an Internet panel. Respondents completed one of two survey versions (9 conditions and 20 conditions) comprising a validated measure of attitudes toward involvement in decision making, 6 CA questions (11 information attributes), 10 DCE questions (4 attributes: 3 process and the ability to make an informed decision), and demographic questions.RESULTS: Of the 702 respondents who completed the survey, 58% were women, 48% were between 25 and 34 years old, and 48% were current parents. All types of information were identified to statistically significantly improve parents' ability to make a decision. Participants preferred taking an "active" role in decision making. Respondents to the 9-condition survey preferred information before 20 weeks (willingness to pay [WTP] £11.88; CI £5.56 to £19.53) and the 20-condition group after 20 weeks (WTP £15.91; CI £10.64 to £21.63). All respondents disliked receiving information 3 days after birth, with the 20-condition group also being averse to receiving it on day 5 (WTP -£11.20; CI -£18.40 to 5.72). Respondents in both groups preferred to receive their information in an individual discussion.CONCLUSIONS: This study suggests that parents' preferences for receiving NBS information differ from how this information is given in current UK practice.

KW - Adolescent

KW - Adult

KW - Choice Behavior

KW - Consumer Behavior

KW - Consumer Health Information

KW - Dried Blood Spot Testing

KW - Female

KW - Health Knowledge, Attitudes, Practice

KW - Humans

KW - Infant, Newborn

KW - Male

KW - Middle Aged

KW - Neonatal Screening/methods

KW - Parents/psychology

KW - Surveys and Questionnaires

KW - United Kingdom

KW - Young Adult

U2 - 10.1016/j.jval.2016.11.007

DO - 10.1016/j.jval.2016.11.007

M3 - Article

VL - 20

SP - 651

EP - 661

JO - Value in Health

JF - Value in Health

SN - 1098-3015

IS - 4

ER -