Beyond the shrinking world: dementia, localisation and neighbourhoodCitation formats

  • External authors:
  • Richard Ward
  • Kirstein Rummery
  • Elzana Odzakovic
  • Kainde Manji
  • Agneta Kullberg
  • Andrew Clark
  • Sarah Campbell

Standard

Beyond the shrinking world: dementia, localisation and neighbourhood. / Ward, Richard; Rummery, Kirstein; Odzakovic, Elzana; Manji, Kainde; Kullberg, Agneta; Keady, John; Clark, Andrew; Campbell, Sarah.

In: Ageing and Society, 22.03.2021, p. 1-22.

Research output: Contribution to journalArticlepeer-review

Harvard

Ward, R, Rummery, K, Odzakovic, E, Manji, K, Kullberg, A, Keady, J, Clark, A & Campbell, S 2021, 'Beyond the shrinking world: dementia, localisation and neighbourhood', Ageing and Society, pp. 1-22. https://doi.org/10.1017/S0144686X21000350

APA

Ward, R., Rummery, K., Odzakovic, E., Manji, K., Kullberg, A., Keady, J., Clark, A., & Campbell, S. (2021). Beyond the shrinking world: dementia, localisation and neighbourhood. Ageing and Society, 1-22. https://doi.org/10.1017/S0144686X21000350

Vancouver

Ward R, Rummery K, Odzakovic E, Manji K, Kullberg A, Keady J et al. Beyond the shrinking world: dementia, localisation and neighbourhood. Ageing and Society. 2021 Mar 22;1-22. https://doi.org/10.1017/S0144686X21000350

Author

Ward, Richard ; Rummery, Kirstein ; Odzakovic, Elzana ; Manji, Kainde ; Kullberg, Agneta ; Keady, John ; Clark, Andrew ; Campbell, Sarah. / Beyond the shrinking world: dementia, localisation and neighbourhood. In: Ageing and Society. 2021 ; pp. 1-22.

Bibtex

@article{e5635cd385984370bda63e7237626303,
title = "Beyond the shrinking world: dementia, localisation and neighbourhood",
abstract = "{\textquoteleft}Dementia-friendly communities{\textquoteright} herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a {\textquoteleft}shrinking world{\textquoteright} whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding {\textquoteleft}lived place{\textquoteright} and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.",
author = "Richard Ward and Kirstein Rummery and Elzana Odzakovic and Kainde Manji and Agneta Kullberg and John Keady and Andrew Clark and Sarah Campbell",
year = "2021",
month = mar,
day = "22",
doi = "10.1017/S0144686X21000350",
language = "English",
pages = "1--22",
journal = "Ageing and Society",
issn = "0144-686X",
publisher = "Cambridge University Press",

}

RIS

TY - JOUR

T1 - Beyond the shrinking world: dementia, localisation and neighbourhood

AU - Ward, Richard

AU - Rummery, Kirstein

AU - Odzakovic, Elzana

AU - Manji, Kainde

AU - Kullberg, Agneta

AU - Keady, John

AU - Clark, Andrew

AU - Campbell, Sarah

PY - 2021/3/22

Y1 - 2021/3/22

N2 - ‘Dementia-friendly communities’ herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a ‘shrinking world’ whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding ‘lived place’ and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.

AB - ‘Dementia-friendly communities’ herald a shift toward the neighbourhood as a locus for the care and support of people with dementia, sparking growing interest in the geographies of dementia care and raising questions over the shifting spatial and social experience of the condition. Existing research claims that many people with dementia experience a ‘shrinking world’ whereby the boundaries to their social and physical worlds gradually constrict over time, leading to a loss of control and independence. This paper reports a five-year, international study that investigated the neighbourhood experience of people with dementia and those who care for and support them. We interrogate the notion of a shrinking world and in so doing highlight an absence of attention paid to the agency and actions of people with dementia themselves. The paper draws together a socio-relational and embodied-material approach to question the adequacy of the shrinking world concept as an explanatory framework and to challenge reliance within policy and practice upon notions of place as fixed or stable. We argue instead for the importance of foregrounding ‘lived place’ and attending to social practices and the networks in which such practices evolve. Our findings have implications for policy and practice, emphasising the need to bolster the agency of people living with dementia as a route to fostering accessible and inclusive neighbourhoods.

U2 - 10.1017/S0144686X21000350

DO - 10.1017/S0144686X21000350

M3 - Article

SP - 1

EP - 22

JO - Ageing and Society

JF - Ageing and Society

SN - 0144-686X

ER -