Auditory neuropathy spectrum disorder in the wider health context: Experiences of parents whose infants have been identified through newborn hearing screening programme

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Objective: This paper presents an insight into the parental experiences of how parents made sense of having their child identified with auditory neuropathy spectrum disorder (ANSD), given the broader context of their child's other health issues. Design: Qualitative narrative study. Study sample: Twenty-one families participated whose children had been identified with ANSD through the newborn hearing screening programme. Results: The majority of parents in the sample were overwhelmed with perinatal health issues and initially gave the diagnosis of ANSD very low priority. Conclusions: An understanding of parents' perspective is particularly relevant to everyone involved in early support and management of infants with ANSD. © 2012 British Society of Audiology, International Society of Audiology, and Nordic Audiological Society.

Bibliographical metadata

Original languageEnglish
Pages (from-to)186-193
Number of pages7
JournalInternational Journal of Audiology
Issue number3
Publication statusPublished - Mar 2012

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